I just wanted to post a quick update regarding Matt’s AVF and our treatment plan. I spoke to the nurse for the dr in Iowa City this week, and he has determined that Matt’s malformation IS an AVF and he recommends another embolization. He believes the best treatment option is to go back in and try to embolize the remaining vessels in the AVF. Unfortunately, I haven’t had a chance to speak with the dr himself to ask him some of our questions…but hopefully we will get them answered soon. In the mean time we have booked his procedure for January 4th. It will be another 3 day process…traveling out the day before the procedure for pre-op stuff, then the procedure day and recovery in the ICU, then another night of recovery on the neuro floor. Matt is less than thrilled…FAR less than thrilled, about having to endure this procedure again. It was truly the worst experience to date, for him. Neither one of us are looking forward to having to go through it again…but we’re trying to look forward to days when the threat of another bleed is behind us. The risk of not doing anything is one that I’m not comfortable living with indefinitely. So…that is the plan for now. We are hoping to get our questions answered, then put the procedure on the back burner and enjoy the holiday season. Please keep Matt in your thoughts and prayers…he is frustrated, scared, and tired of this situation in general.
First of all, I just want to say…we had the BEST time this weekend in Florida. Truly, truly…it was so wonderful. I can’t tell you how many times we stopped to look at each other throughout the weekend and reiterate how great a time we were having. It was one of the best weekends…EVER! Thursday we arrived in Orlando after a fairly uneventful trip through Memphis, in the early evening hours. It was warm and sunny and we were tickled to be on our way to our Disney resort. Now, neither Matt nor I have ever been super crazy about Disney. I mean, sure, when we were kids we liked certain Disney characters (and I could probably still sing every song from the Little Mermaid) but we weren’t really interested in the Disney park experience. Going to Disney to run this race, obviously wasn’t the motivation for me…it was running in honor of Matt…and the warm, sunny location was a happy side effect. We just planned to take it easy and have a relaxing weekend away (oh, and run a half marathon), but...
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