Skip to main content

Monday Update: 02/06/06

Well, back to how MATT is doing, huh!? He is doing great….really great. He keeps improving in every way, slowly, but surely. One of his occupational therapist retested his grip and pinch strength, as well as how quickly he can put small pegs in and out of a special board. Well, he improved in every way since they last tested him, 4 weeks earlier. The strength, accuracy, and mobility have increased the most in his right hand, which made him very happy! It is good for him to see measurable improvement. It’s sometimes hard for him to really see the progress he’s making, but when something is measured like this, it’s hard to argue with it!

His speech therapist has also suggested we tape certain places on Matt’s face to help with his speech and facial muscles. So, we’ve been putting tape on his right cheek, pulling his upper lip up slightly and tape over his jaw muscles on the left side. Apparently, this combination is supposed to help keep his jaw and lip from pulling too much to the left side, and instead help pull it up on the right side and keep it more symmetrical. So far, it does seem to help him speak a bit more normally and keep his lips lined up more symmetrically. Overall, his speech is improving as well as his facial muscles…when he smiles naturally he is getting more and more movement on that right side. When he tries, he can get both sides up normally, just not as much when he naturally smiles. Not YET…anyway! But, he’s making strides with that as well all the time.

We are going to get a wheeled walker today, to keep here at home. We’ve been using the one from therapy on the weekends…and it just helps SO much. Matt walks so much better with it, and is able to control it a lot better than he could have a few months ago. It is just a tiny bit bigger than the doorway to our bedroom, but if you finagle it just right you can get it through. I didn’t think he’d be able to maneuver it himself, but he sure can! I just walk behind him and help support his upper body if he leans back too far…but I’m really not helping much at all most of the time. Yesterday, I noticed for the first time that his walking was much more fluid. He was walking and pushing the walker at the same time, rather than talking a step and then moving the walker. He walked across the living room in no time! I think he can finally see the benefits of using it as well. At least for now…it’s a tool to get him walking more and walking BETTER! Matt says that once his balance gets better, he’s just going to take off…and I don’t doubt it!!

We met with the Neurosurgeon who will coordinate with the Radiation Oncologist on Matt’s Cyberknife treatment last week. He just wanted to meet us and discuss the treatment a little more. We didn’t learn anything we didn’t already know, but he just reiterated that Matt’s AVM is the ideal candidate for this treatment due to its small size and location. He was optimistic that this treatment will do the trick for Matt, over time. So, we’re just waiting for them to schedule Matt’s brain scan and then the treatment itself. I think it’ll probably be in the next week or two. The doctors have to plan out Matt’s treatment based on the brain scans and put all the data into their computer to map out the treatment. This planning phase can take a week or so, they tell us. We’ll let everyone know as soon as we do.

We also saw Matt’s Physiatrist last week for a check up. He has been receiving weekly reports from Matt’s therapists on his progress and thought things looked good. He was very encouraging that Matt should continue to improve as he continues to work hard and the brain heals itself.

We are meeting with the Neurologist today to check in with her since leaving Younker. Matt’s right hand is getting a little stiffer these days, so we’re going to see what she thinks about another possible Botox injection and fill her in on all the developments since we last saw her (ie the AVM).

It is good to have so many good doctors following Matt’s progress, but on the flip side, it will be nice when we don’t have so many appointments to schedule!

In the meantime, we are looking forward to warmer weather, and enjoying time together doing the things we like as Matt begins to feel better and better.


Popular posts from this blog

Where We're at…Right Now

This whole adoption thing is tough stuff, friends. It is a roller coaster ride like no other. And I have to be honest – I’m still not sure this will be it for us. I want to believe it is…but I’m just.not.sure. Matt and I were on our way to church yesterday, listening to the 90’s station when the cult classic ‘Achy Breaky Heart’ came on. We both giggled…and may have turned it up a tad. Near the end we both howled out a woooo-woooo in near perfect, spontaneous, unison with dear mullet headed Billy Ray. It made me laugh instantly and I blurted out ‘we’re so perfect together’. And honestly – we are.
That thought stuck with me all morning.  We.are.perfect.together.  What we have – our marriage, our friendship, our devotion and commitment to each other….they are priceless. Our union is a blessing. It is blessed. 100% meant to be. No doubt in my mind. There is no one on this planet who could ever know me like Matt. We have been through hell and back together. In the hospital, shortly after his …

I may as well tell you...

I had a miscarriage. I’ve debated for weeks whether or not to acknowledge it publicly. It’s such a personal thing…and this is such a public medium. But a few months have gone by and I’m no closer to feeling ok about it and truly nothing else on my mind really compares, so here I am, letting the world in on my secret. Over the past few weeks I’ve found very little comfort in the fact that only a small handful of people know about the miscarriage. It became nearly unbearable this week, during all our wonderful family Christmas celebrations. Being surrounded by so many people who love me and support me and have no idea how my heart has been broken – it’s a lonely place to be. Not that I would want them all to bombard me with pity or questions or sad looks in their eyes – I realize I can’t have it both ways. But a little acknowledgement goes a long way and I simply can’t ignore or deny the fact that something major happened in my life and impacted me, impacts me still.
It was a warm, sunn…

Mother's Day Emotions

Mother’s Day weekend is coming and I’m finding myself all sorts of emotional – go figure. I think the anticipation of how I might feel on my very first Mother’s Day after so many years of hoping, waiting, and wondering sort of made it a bit anticlimactic. Or maybe I guarded my heart a little and didn’t fully let the magnitude of my emotions wash over me. Regardless, I find myself MUCH more emotional this time around.
Last night we watched a TV show about children growing up and moving out etc…and I actually cried. All those jerks who told me how fast children grow and how quickly the time moves…were right. Of course I feel how swiftly time moves the older I get…I blinked and now I’m in my (gulp) 40’s. But I simply could not have fathomed how I would feel about the amount of time I have to be Ethan’s mother. It feels finite. Fleeting. Just not enough.
Don’t get me wrong, I love watching Ethan grow! He is learning and changing and cracking me up all the time. He loves climbing, and runn…