Skip to main content

Wednesday Update: 5/30/07

Well, our trip to Iowa City went well yesterday. Matt had an MRI in the morning, then we met with the neuro doctors in the afternoon to discuss. Basically, the MRI looks ‘good’. And by good, they say that it looks better than the angiogram did last winter. Apparently, the small vessels which still have blow flowing through them now appear smaller than they did in the angiogram. Because the flow is less, the likelihood of a rebleed is less…so we all agreed to follow it a little longer, rather than try and treat it just yet. We had the opportunity to explain just how awful our experience was to the doctor, and it felt really good to lay it out there and just spew about how bad it was. He was pretty wide eyed after that, I think we surprised him with our honesty!! We all decided to repeat another MRI in another 6 months, and see how things look then. If there are changes, we’ll have to discuss treatment…if it appears stable, we may just follow it with repeat MRIs for a while. I think we all felt good with that decision.

Today, we met with the neurologist here in Des Moines to talk about Matt’s tremor medication. We are still not satisfied with the effectiveness of the current meds. So, we are going to wean Matt off of one, to see if there are any effects. Then we are going to see how the next several weeks go, and touch base again in early July. At that time, we have another medication we may try. She explained that there are other classes of medications we could try, but that they have more negative side effects which she thinks would inhibit Matt’s recovery more than the tremor…so we’ll see how things go. Overall, she thinks the tremor is improved, but appreciates how much it drives him crazy at times. She said that his tremor is one of the most difficult types to treat, naturally. Why does it seem that all of Matt’s ‘issues’ are so difficult to treat? Sheesh. We trust her judgment though, and will work together with her guidance to treat the tremor.

Comments

Popular posts from this blog

Where We're at…Right Now

This whole adoption thing is tough stuff, friends. It is a roller coaster ride like no other. And I have to be honest – I’m still not sure this will be it for us. I want to believe it is…but I’m just.not.sure. Matt and I were on our way to church yesterday, listening to the 90’s station when the cult classic ‘Achy Breaky Heart’ came on. We both giggled…and may have turned it up a tad. Near the end we both howled out a woooo-woooo in near perfect, spontaneous, unison with dear mullet headed Billy Ray. It made me laugh instantly and I blurted out ‘we’re so perfect together’. And honestly – we are.
That thought stuck with me all morning.  We.are.perfect.together.  What we have – our marriage, our friendship, our devotion and commitment to each other….they are priceless. Our union is a blessing. It is blessed. 100% meant to be. No doubt in my mind. There is no one on this planet who could ever know me like Matt. We have been through hell and back together. In the hospital, shortly after his …

Mother's Day Emotions

Mother’s Day weekend is coming and I’m finding myself all sorts of emotional – go figure. I think the anticipation of how I might feel on my very first Mother’s Day after so many years of hoping, waiting, and wondering sort of made it a bit anticlimactic. Or maybe I guarded my heart a little and didn’t fully let the magnitude of my emotions wash over me. Regardless, I find myself MUCH more emotional this time around.
Last night we watched a TV show about children growing up and moving out etc…and I actually cried. All those jerks who told me how fast children grow and how quickly the time moves…were right. Of course I feel how swiftly time moves the older I get…I blinked and now I’m in my (gulp) 40’s. But I simply could not have fathomed how I would feel about the amount of time I have to be Ethan’s mother. It feels finite. Fleeting. Just not enough.
Don’t get me wrong, I love watching Ethan grow! He is learning and changing and cracking me up all the time. He loves climbing, and runn…

I may as well tell you...

I had a miscarriage. I’ve debated for weeks whether or not to acknowledge it publicly. It’s such a personal thing…and this is such a public medium. But a few months have gone by and I’m no closer to feeling ok about it and truly nothing else on my mind really compares, so here I am, letting the world in on my secret. Over the past few weeks I’ve found very little comfort in the fact that only a small handful of people know about the miscarriage. It became nearly unbearable this week, during all our wonderful family Christmas celebrations. Being surrounded by so many people who love me and support me and have no idea how my heart has been broken – it’s a lonely place to be. Not that I would want them all to bombard me with pity or questions or sad looks in their eyes – I realize I can’t have it both ways. But a little acknowledgement goes a long way and I simply can’t ignore or deny the fact that something major happened in my life and impacted me, impacts me still.
It was a warm, sunn…