I just wanted to post a quick update regarding Matt’s AVF and our treatment plan. I spoke to the nurse for the dr in Iowa City this week, and he has determined that Matt’s malformation IS an AVF and he recommends another embolization. He believes the best treatment option is to go back in and try to embolize the remaining vessels in the AVF. Unfortunately, I haven’t had a chance to speak with the dr himself to ask him some of our questions…but hopefully we will get them answered soon. In the mean time we have booked his procedure for January 4th. It will be another 3 day process…traveling out the day before the procedure for pre-op stuff, then the procedure day and recovery in the ICU, then another night of recovery on the neuro floor. Matt is less than thrilled…FAR less than thrilled, about having to endure this procedure again. It was truly the worst experience to date, for him. Neither one of us are looking forward to having to go through it again…but we’re trying to look forward to days when the threat of another bleed is behind us. The risk of not doing anything is one that I’m not comfortable living with indefinitely. So…that is the plan for now. We are hoping to get our questions answered, then put the procedure on the back burner and enjoy the holiday season. Please keep Matt in your thoughts and prayers…he is frustrated, scared, and tired of this situation in general.
If you had been a customer of the Longhorn Steakhouse on Highway 19 in Palm Harbor, FL last Sunday night, you may have seen two couples walking through the restaurant, oogling a sweet baby boy on the way to their table. You may have commented on how cute he was. You may have thought he looked a lot like the woman carrying him. You may have wondered about the man in the wheelchair. But you likely would not have assumed you’d be witnessing this baby’s biological parents sit down to dine with his adoptive parents. It’s a scene I’ve been playing over and over in my mind as I recount the wonderful experiences of our trip to Florida. The magnitude of that moment, that evening, will never be lost on me. It was incredible to be a part of – and I’m so very grateful we had it. We had met up with Ethan’s birthmother, L, earlier in the day. She hadn’t seen him since he was a few hours old and was anxiously waiting for us outside a local mall. As soon as we saw each other the tears welled up in o...
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