I just wanted to post a quick update regarding Matt’s AVF and our treatment plan. I spoke to the nurse for the dr in Iowa City this week, and he has determined that Matt’s malformation IS an AVF and he recommends another embolization. He believes the best treatment option is to go back in and try to embolize the remaining vessels in the AVF. Unfortunately, I haven’t had a chance to speak with the dr himself to ask him some of our questions…but hopefully we will get them answered soon. In the mean time we have booked his procedure for January 4th. It will be another 3 day process…traveling out the day before the procedure for pre-op stuff, then the procedure day and recovery in the ICU, then another night of recovery on the neuro floor. Matt is less than thrilled…FAR less than thrilled, about having to endure this procedure again. It was truly the worst experience to date, for him. Neither one of us are looking forward to having to go through it again…but we’re trying to look forward to days when the threat of another bleed is behind us. The risk of not doing anything is one that I’m not comfortable living with indefinitely. So…that is the plan for now. We are hoping to get our questions answered, then put the procedure on the back burner and enjoy the holiday season. Please keep Matt in your thoughts and prayers…he is frustrated, scared, and tired of this situation in general.
So, I’ve been trying to sort out how to start this story. It’s been difficult to articulate. Difficult to pick which details to share, and which to hold close. But it’s a story too good, too beautiful, not to share – so here goes! When Matt and I first became parents, we thought our family was complete. We envisioned raising Ethan surrounded by loving friends and family – just the two of us. Given all that we had gone through to finally become parents, we felt content with just the one child. The most adorable boy in the whole wide world. Our Ethan was the apple of our eyes – the most amazing gift. We marveled at all of his accomplishments, soaked up all his love and personality, and celebrated the joy of parenthood at every exhausting, wonderful turn. Along the way, we’ve built a strong and loving relationship with Ethan’s birthmother. We visit yearly, and stay in close contact with pictures, emails, and texts. I have attempted to describe my feelings for her many times over the
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