I just wanted to post a quick update regarding Matt’s AVF and our treatment plan. I spoke to the nurse for the dr in Iowa City this week, and he has determined that Matt’s malformation IS an AVF and he recommends another embolization. He believes the best treatment option is to go back in and try to embolize the remaining vessels in the AVF. Unfortunately, I haven’t had a chance to speak with the dr himself to ask him some of our questions…but hopefully we will get them answered soon. In the mean time we have booked his procedure for January 4th. It will be another 3 day process…traveling out the day before the procedure for pre-op stuff, then the procedure day and recovery in the ICU, then another night of recovery on the neuro floor. Matt is less than thrilled…FAR less than thrilled, about having to endure this procedure again. It was truly the worst experience to date, for him. Neither one of us are looking forward to having to go through it again…but we’re trying to look forward to days when the threat of another bleed is behind us. The risk of not doing anything is one that I’m not comfortable living with indefinitely. So…that is the plan for now. We are hoping to get our questions answered, then put the procedure on the back burner and enjoy the holiday season. Please keep Matt in your thoughts and prayers…he is frustrated, scared, and tired of this situation in general.
Mother’s Day weekend is coming and I’m finding myself all sorts of emotional – go figure. I think the anticipation of how I might feel on my very first Mother’s Day after so many years of hoping, waiting, and wondering sort of made it a bit anticlimactic. Or maybe I guarded my heart a little and didn’t fully let the magnitude of my emotions wash over me. Regardless, I find myself MUCH more emotional this time around. Last night we watched a TV show about children growing up and moving out etc…and I actually cried. All those jerks who told me how fast children grow and how quickly the time moves…were right. Of course I feel how swiftly time moves the older I get…I blinked and now I’m in my (gulp) 40’s. But I simply could not have fathomed how I would feel about the amount of time I have to be Ethan’s mother. It feels finite. Fleeting. Just not enough. Don’t get me wrong, I love watching Ethan grow! He is learning and changing and cracking me up all the time. He loves climb...
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