Skip to main content

Friday Update: 05/05/06

Well, today we met with a neuro-psychologist from QLI Omaha. He came out first thing this morning to talk to Matt and I, to get a better idea of how things are going. They wanted to see if Matt looked like a good fit for their rehab program etc. We sat and talked with him for about an hour, just going over what things are like here at home and what goals Matt has for his long term rehab. Obviously we want to maximize his rehab and get as much back as he can. The doctor from QLI thought Matt would be a great candidate. He could see how motivated Matt is, how bright he is, and ready to take on challenges. He explained how their program would work a little bit more, which helped us try and get an idea of what his days would be like. They have the residents living in separate houses on the campus, each with their own bedroom. Each house is staffed with people to help with the day to day tasks. But I get the idea that the residents do as much as they can for themselves in each house. Each house has its own kitchen etc, where all meals are prepared. I told Matt…sounds like he could get some practice cooking and MAYBE even washing up dishes!! Overall, the visit was good.

Of course, so much time has gone by, they are unsure if insurance will approve the request…so that is the next hurdle. I had also sort of talked myself into thinking that he may not be approved to go…so I don’t think I really dealt with the thought of him actually going and what that would be like. The longer he is home, the more of the old Matt comes out…the more I want him to stay with me here at home. I know I’m being selfish…I would just miss him so much. I know that if insurance agrees he can go, then he has to go. We have to make this sacrifice for the long term good it could provide. It would just be very difficult to be apart. Like everything though, we try not to worry about it too much until the time has come.

Yesterday we saw Matt’s neurologist who prescribed a new drug for the tremor that has really started to affect his right hand. She explained that the tremor is caused by lack of dopamine in Matt’s body. This is another chemical that is produced (where else) but the brain stem…so Matt’s hemorrhage has affected this production, causing the tremor. The medication that he started will trigger a reaction in the body to produce the needed dopamine and should help alleviate the tremor. Dr. Struck explained that it is not unlike a Parkinson’s tremor, just caused by the hemorrhage, instead of the disease. She is an expert in Parkinson’s treatment and research, so she is confident this drug should help. We hope so! It will be good to get that hand going back to normal again.

Matt continues to do well in all of his therapies. The weekly PT sessions in the water are going really well also. He’s been working hard on his walking and is very close to being able to walk with the walker by himself. Last week I did actually have him walk across the living room with the walker and I wasn’t even touching him! He did pretty well too! Most of the time, he only requires a tiny bit of help if he starts to lose his balance, usually he can self correct and keep going.
Matt’s latest speech intelligibility tests result came back with big improvements. His therapist had 5 different unfamiliar people listen to the tapes and came back with really good results. His intelligibility for sentences was 97% and for single words was around 82%. The first time they did these tests, his percentages were in the 20s and 30s! He was pretty excited about the results! He’s plugging away, as usual…and making good progress along the way. We still haven’t heard anything on timing for the embolization procedure, but I will keep you all posted when I have news. In the mean time…HAPPY SPRING!


309q said…
Get any Desired College Degree, In less then 2 weeks.

Call this number now 24 hours a day 7 days a week (413) 208-3069

Get these Degrees NOW!!!

"BA", "BSc", "MA", "MSc", "MBA", "PHD",

Get everything within 2 weeks.
100% verifiable, this is a real deal

Act now you owe it to your future.

(413) 208-3069 call now 24 hours a day, 7 days a week.

Popular posts from this blog

Where We're at…Right Now

This whole adoption thing is tough stuff, friends. It is a roller coaster ride like no other. And I have to be honest – I’m still not sure this will be it for us. I want to believe it is…but I’m just.not.sure. Matt and I were on our way to church yesterday, listening to the 90’s station when the cult classic ‘Achy Breaky Heart’ came on. We both giggled…and may have turned it up a tad. Near the end we both howled out a woooo-woooo in near perfect, spontaneous, unison with dear mullet headed Billy Ray. It made me laugh instantly and I blurted out ‘we’re so perfect together’. And honestly – we are.
That thought stuck with me all morning.  We.are.perfect.together.  What we have – our marriage, our friendship, our devotion and commitment to each other….they are priceless. Our union is a blessing. It is blessed. 100% meant to be. No doubt in my mind. There is no one on this planet who could ever know me like Matt. We have been through hell and back together. In the hospital, shortly after his …

I may as well tell you...

I had a miscarriage. I’ve debated for weeks whether or not to acknowledge it publicly. It’s such a personal thing…and this is such a public medium. But a few months have gone by and I’m no closer to feeling ok about it and truly nothing else on my mind really compares, so here I am, letting the world in on my secret. Over the past few weeks I’ve found very little comfort in the fact that only a small handful of people know about the miscarriage. It became nearly unbearable this week, during all our wonderful family Christmas celebrations. Being surrounded by so many people who love me and support me and have no idea how my heart has been broken – it’s a lonely place to be. Not that I would want them all to bombard me with pity or questions or sad looks in their eyes – I realize I can’t have it both ways. But a little acknowledgement goes a long way and I simply can’t ignore or deny the fact that something major happened in my life and impacted me, impacts me still.
It was a warm, sunn…

Mother's Day Emotions

Mother’s Day weekend is coming and I’m finding myself all sorts of emotional – go figure. I think the anticipation of how I might feel on my very first Mother’s Day after so many years of hoping, waiting, and wondering sort of made it a bit anticlimactic. Or maybe I guarded my heart a little and didn’t fully let the magnitude of my emotions wash over me. Regardless, I find myself MUCH more emotional this time around.
Last night we watched a TV show about children growing up and moving out etc…and I actually cried. All those jerks who told me how fast children grow and how quickly the time moves…were right. Of course I feel how swiftly time moves the older I get…I blinked and now I’m in my (gulp) 40’s. But I simply could not have fathomed how I would feel about the amount of time I have to be Ethan’s mother. It feels finite. Fleeting. Just not enough.
Don’t get me wrong, I love watching Ethan grow! He is learning and changing and cracking me up all the time. He loves climbing, and runn…