Skip to main content

Thursday Update: 05/25/06

FINALLY…NEWS!!!!!!!!!!!!!!!!!!!!
Matt is approved to go to QLI Omaha!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I finally got all the details worked out with insurance and QLI yesterday. Matt will be able to go there for 98 days, under my benefit. We are so excited, and so nervous…it just opens up all kinds of questions and worries…mostly just of the unknown. We discussed possible admit dates and finally agreed that it made more sense to wait until after his embolization procedure in June. So, we will be coming home from IA City on the 10th, and heading to Omaha on the 12th! We were talking last night…and 98 days would take him past his birthday (September 9th) and he wants to be home for that…so even though it’s far out there, we’re thinking he’ll come home on September 8th. That’s what we’re HOPING for, anyway!

We’re happy we can wait a few more weeks, until after the procedure, to get going. That’ll give us time to get organized, figure out what we need to bring, and prepare for this big change. It will be the first time that Matt hasn’t had me there to care for him throughout the day, and he’s nervous about that. We’ve grown comfortable, of course, so it’s going to be a whole new ball game for him…and for me.

The house he will be in will feel sort of like living in a dorm. He will have his own room, and may share a bathroom with another person. He will participate in preparing the meals with the other residents of the house, and will also be working 6 + hours/day in therapy!!! It won’t all be traditional, structured PT, OT, and Speech like he’s been used to…they will work on everyday life skills as well. They go out into the community a lot too, to work on those everyday activities and functions. I’m so excited for Matt to have the opportunity to really work hard and make good gains. Everyone there is excited to have him come.

Many of Matt’s therapists over the months have said how they wished they could spend more time working with him…that he is such a hard worker, so motivated, and so driven. They just love being able to work with him. It is my hope that all the new therapists he’ll be working with in Omaha will feel the same way, and get to expand on the time they work with him. I am excited to the possibility of positive results! We are so blessed for this chance…I pray that it makes a big difference in Matt’s recovery.

So, be thinking of us over these next few weeks. It will be a time of preparation, and a time of change. It is going to be very hard for us to be separated…we are so close, and such a team. It will be hard for me to give him over to others for fulltime care and companionship. It will be hard…but it will be worth it.

Comments

Popular posts from this blog

I Was Born in a Small Town

So we’ve decided to move. We love Ankeny, our house, and our neighborhood so it’s a little bittersweet to think about moving, but ever since Ethan came along - oh how things have changed. When we set out to build a wheelchair friendly house for Matt nearly 9 years ago, we were mainly focused on the functionality inside the house. While of course we wanted the ease and function of zero grade entry, we also yearned for the freedom he would know in a house with wider doorways and room to maneuver the bulky chair. In our old house there were literally rooms he never went into, simply because he couldn’t get through. Our Ankeny home was a dream come true in so many ways. And it was lovingly planned out and put together by so many incredibly generous and thoughtful people. We were humbled time and time again with how things came together for us in that house. I’ll never forget coming home for the first time with Matt after our long, exhausting trip back from China. It was late, we were jet …

Where We're at…Right Now

This whole adoption thing is tough stuff, friends. It is a roller coaster ride like no other. And I have to be honest – I’m still not sure this will be it for us. I want to believe it is…but I’m just.not.sure. Matt and I were on our way to church yesterday, listening to the 90’s station when the cult classic ‘Achy Breaky Heart’ came on. We both giggled…and may have turned it up a tad. Near the end we both howled out a woooo-woooo in near perfect, spontaneous, unison with dear mullet headed Billy Ray. It made me laugh instantly and I blurted out ‘we’re so perfect together’. And honestly – we are.
That thought stuck with me all morning.  We.are.perfect.together.  What we have – our marriage, our friendship, our devotion and commitment to each other….they are priceless. Our union is a blessing. It is blessed. 100% meant to be. No doubt in my mind. There is no one on this planet who could ever know me like Matt. We have been through hell and back together. In the hospital, shortly after his …

Mother's Day Emotions

Mother’s Day weekend is coming and I’m finding myself all sorts of emotional – go figure. I think the anticipation of how I might feel on my very first Mother’s Day after so many years of hoping, waiting, and wondering sort of made it a bit anticlimactic. Or maybe I guarded my heart a little and didn’t fully let the magnitude of my emotions wash over me. Regardless, I find myself MUCH more emotional this time around.
Last night we watched a TV show about children growing up and moving out etc…and I actually cried. All those jerks who told me how fast children grow and how quickly the time moves…were right. Of course I feel how swiftly time moves the older I get…I blinked and now I’m in my (gulp) 40’s. But I simply could not have fathomed how I would feel about the amount of time I have to be Ethan’s mother. It feels finite. Fleeting. Just not enough.
Don’t get me wrong, I love watching Ethan grow! He is learning and changing and cracking me up all the time. He loves climbing, and runn…