Skip to main content

Thursday Update: 05/25/06

FINALLY…NEWS!!!!!!!!!!!!!!!!!!!!
Matt is approved to go to QLI Omaha!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I finally got all the details worked out with insurance and QLI yesterday. Matt will be able to go there for 98 days, under my benefit. We are so excited, and so nervous…it just opens up all kinds of questions and worries…mostly just of the unknown. We discussed possible admit dates and finally agreed that it made more sense to wait until after his embolization procedure in June. So, we will be coming home from IA City on the 10th, and heading to Omaha on the 12th! We were talking last night…and 98 days would take him past his birthday (September 9th) and he wants to be home for that…so even though it’s far out there, we’re thinking he’ll come home on September 8th. That’s what we’re HOPING for, anyway!

We’re happy we can wait a few more weeks, until after the procedure, to get going. That’ll give us time to get organized, figure out what we need to bring, and prepare for this big change. It will be the first time that Matt hasn’t had me there to care for him throughout the day, and he’s nervous about that. We’ve grown comfortable, of course, so it’s going to be a whole new ball game for him…and for me.

The house he will be in will feel sort of like living in a dorm. He will have his own room, and may share a bathroom with another person. He will participate in preparing the meals with the other residents of the house, and will also be working 6 + hours/day in therapy!!! It won’t all be traditional, structured PT, OT, and Speech like he’s been used to…they will work on everyday life skills as well. They go out into the community a lot too, to work on those everyday activities and functions. I’m so excited for Matt to have the opportunity to really work hard and make good gains. Everyone there is excited to have him come.

Many of Matt’s therapists over the months have said how they wished they could spend more time working with him…that he is such a hard worker, so motivated, and so driven. They just love being able to work with him. It is my hope that all the new therapists he’ll be working with in Omaha will feel the same way, and get to expand on the time they work with him. I am excited to the possibility of positive results! We are so blessed for this chance…I pray that it makes a big difference in Matt’s recovery.

So, be thinking of us over these next few weeks. It will be a time of preparation, and a time of change. It is going to be very hard for us to be separated…we are so close, and such a team. It will be hard for me to give him over to others for fulltime care and companionship. It will be hard…but it will be worth it.

Comments

Popular posts from this blog

A Glimpse Into Open Adoption

If you had been a customer of the Longhorn Steakhouse on Highway 19 in Palm Harbor, FL last Sunday night, you may have seen two couples walking through the restaurant, oogling a sweet baby boy on the way to their table. You may have commented on how cute he was. You may have thought he looked a lot like the woman carrying him. You may have wondered about the man in the wheelchair. But you likely would not have assumed you’d be witnessing this baby’s biological parents sit down to dine with his adoptive parents. It’s a scene I’ve been playing over and over in my mind as I recount the wonderful experiences of our trip to Florida. The magnitude of that moment, that evening, will never be lost on me. It was incredible to be a part of – and I’m so very grateful we had it. We had met up with Ethan’s birthmother, L, earlier in the day. She hadn’t seen him since he was a few hours old and was anxiously waiting for us outside a local mall. As soon as we saw each other the tears welled up in o...

I may as well tell you...

I had a miscarriage. I’ve debated for weeks whether or not to acknowledge it publicly. It’s such a personal thing…and this is such a public medium. But a few months have gone by and I’m no closer to feeling ok about it and truly nothing else on my mind really compares, so here I am, letting the world in on my secret. Over the past few weeks I’ve found very little comfort in the fact that only a small handful of people know about the miscarriage. It became nearly unbearable this week, during all our wonderful family Christmas celebrations. Being surrounded by so many people who love me and support me and have no idea how my heart has been broken – it’s a lonely place to be. Not that I would want them all to bombard me with pity or questions or sad looks in their eyes – I realize I can’t have it both ways. But a little acknowledgement goes a long way and I simply can’t ignore or deny the fact that something major happened in my life and impacted me, impacts me still.   It was a ...

Disney Wine & Dine ½ Marathon Weekend Part One – The Trip

First of all, I just want to say…we had the BEST time this weekend in Florida. Truly, truly…it was so wonderful. I can’t tell you how many times we stopped to look at each other throughout the weekend and reiterate how great a time we were having. It was one of the best weekends…EVER! Thursday we arrived in Orlando after a fairly uneventful trip through Memphis, in the early evening hours. It was warm and sunny and we were tickled to be on our way to our Disney resort. Now, neither Matt nor I have ever been super crazy about Disney. I mean, sure, when we were kids we liked certain Disney characters (and I could probably still sing every song from the Little Mermaid) but we weren’t really interested in the Disney park experience. Going to Disney to run this race, obviously wasn’t the motivation for me…it was running in honor of Matt…and the warm, sunny location was a happy side effect. We just planned to take it easy and have a relaxing weekend away (oh, and run a half marathon), but...