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Friday Update: 9/23/05

Well, our first night together in this new room was a little rough, but we made it through and today has been a good day. I think I spent most of the night listening to him breath off and on and just being paranoid that things were ok. Of course, they were. The nurses came in every 2 hours to move him around and take care of his food etc. The feeding tube in his nose is his biggest frustration, right now…that and his eyesight. We got him a better patch today, and that has been helping. The one we had before just wasn’t really doing it’s job.
Matt had a big day today. The 3 therapists (occupational, physical, and speech) came for their first initial visits today. This was after he’d been up in the chair for over an hour! He tolerated that pretty well, but tires easily and was ready to get back in bed. They had him sitting up on the edge of the bed today for his therapy. He didn’t seem to really enjoy it, but I know it had to feel good to get up like that. I think he was more upset that it didn’t come as easily to him as he had hoped. The more aware he is, the more frustrated he becomes. We have to keep trying to explain that his strength will return in time. I think he’s feeling a little betrayed by his body right now.
Rehabilitation is going to be trying on him…but I know his determination and perseverance will prevail in the end. We’ve received information on different rehabilitation facilities as well, and I’ve got to read through all that and figure out what our best route will be. I’ve gotten the impression from the doctors that they expect him to be ready for rehab as early as sometime next week! I’m so excited for that, I can hardly wait!! While it will be strange to be at home without him…it will be so good for him to be at a point he can really understand what is going on and not be upset if I’m not there. For now, I feel like I need to be close by nearly all the time. That, in itself, can be very draining. I do feel a lot more at ease now, just knowing he’s doing so much better medically.

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