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Thursday Update: September 29

Blessing for the day:
Matt FINALLY got rid of that pesky tube in his nose!! (pause for joyous celebration!) Yahoo!!!

The procedure was delayed a bit, but that actually turned into a blessing as well. We are starting to find out that when a hospital employee says ‘soon’ or ‘a little while’…they actually mean ‘we have no idea when it will be, but hope it will be sometime today’.

We thought the procedure to place the PEG tube was going to be at 9:00 AM…by about 10:00 AM they had pushed it back to 2:00 PM. But, the doctor had also ordered a 24 EEG to monitor his brain and just check that everything looks ok in there. They told us they’d do that ‘soon’ around 10:00 AM. By 1:00 PM they had not come to get him yet for the EEG…and we were worried they wouldn’t have enough time to get that hooked up and get him to Radiology in time for the PEG. It was a madhouse getting him from one place to another, but they managed to get both done in one afternoon. Mom and I were scarfing down burgers in the waiting room in between things. I’ve also learned to eat on the run…not really a good thing. I’m looking forward to having time to plan more meals at home for Mom and I. We went home the other night and grilled up some pork chops. We ate out on the patio that night and really enjoyed the beautiful evening. I’m looking forward to more nights like that.

The good thing about having his procedures delayed is that he got in all his therapies beforehand! He actually did really well with the physical therapy. They said his muscles felt more limber and his balance was improved as well. He was able to sit and hold his up pretty darn well! They also tried to have him stand up a bit!!! They got him up about ¾ of the way up and he did really well with that too. I think he was pretty apprehensive to try it, but we were all thrilled to see that progress! We’ve been practicing all his arm and leg exercises in between therapies and he’s been doing really well. I’m pretty sure he’ll be here throughout the weekend, but we’re still not sure where he’s going from here. I will update everyone as soon as we know when and where he’s going.

In the meantime, we are making progress…even with the delays on his tube procedure. Each day I can see improvements in his strength. His eyes seem to be working together better as well, though that will take some time to fully recover.

Thanks to everyone who has sent cards, plants, e-mails, and visits…your thoughts and prayers are so very special to us. We love you all.

Comments

Vicky said…
Dear Matt and Emily,
You BOTH continue to be in my thoughts and prayers. I'm glad they got the PEG tube in.
I didn't know what to say or do when I visited you last Monday. You both seem to have it so all together. I'm proud of you.
When I was sick my motto was, "I will do whatever I have to do to get this all behind me." Let that be one of your mottos, too. The best motto is, "In God we Trust." Put it in his hands.
If you need anything-you know I am only an hour away. Call me at 515-386-2028 or email me at vkinne@netins.net.

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