Skip to main content

Thursday Update: September 29

Blessing for the day:
Matt FINALLY got rid of that pesky tube in his nose!! (pause for joyous celebration!) Yahoo!!!

The procedure was delayed a bit, but that actually turned into a blessing as well. We are starting to find out that when a hospital employee says ‘soon’ or ‘a little while’…they actually mean ‘we have no idea when it will be, but hope it will be sometime today’.

We thought the procedure to place the PEG tube was going to be at 9:00 AM…by about 10:00 AM they had pushed it back to 2:00 PM. But, the doctor had also ordered a 24 EEG to monitor his brain and just check that everything looks ok in there. They told us they’d do that ‘soon’ around 10:00 AM. By 1:00 PM they had not come to get him yet for the EEG…and we were worried they wouldn’t have enough time to get that hooked up and get him to Radiology in time for the PEG. It was a madhouse getting him from one place to another, but they managed to get both done in one afternoon. Mom and I were scarfing down burgers in the waiting room in between things. I’ve also learned to eat on the run…not really a good thing. I’m looking forward to having time to plan more meals at home for Mom and I. We went home the other night and grilled up some pork chops. We ate out on the patio that night and really enjoyed the beautiful evening. I’m looking forward to more nights like that.

The good thing about having his procedures delayed is that he got in all his therapies beforehand! He actually did really well with the physical therapy. They said his muscles felt more limber and his balance was improved as well. He was able to sit and hold his up pretty darn well! They also tried to have him stand up a bit!!! They got him up about ¾ of the way up and he did really well with that too. I think he was pretty apprehensive to try it, but we were all thrilled to see that progress! We’ve been practicing all his arm and leg exercises in between therapies and he’s been doing really well. I’m pretty sure he’ll be here throughout the weekend, but we’re still not sure where he’s going from here. I will update everyone as soon as we know when and where he’s going.

In the meantime, we are making progress…even with the delays on his tube procedure. Each day I can see improvements in his strength. His eyes seem to be working together better as well, though that will take some time to fully recover.

Thanks to everyone who has sent cards, plants, e-mails, and visits…your thoughts and prayers are so very special to us. We love you all.

Comments

Anonymous said…
Dear Matt and Emily,
You BOTH continue to be in my thoughts and prayers. I'm glad they got the PEG tube in.
I didn't know what to say or do when I visited you last Monday. You both seem to have it so all together. I'm proud of you.
When I was sick my motto was, "I will do whatever I have to do to get this all behind me." Let that be one of your mottos, too. The best motto is, "In God we Trust." Put it in his hands.
If you need anything-you know I am only an hour away. Call me at 515-386-2028 or email me at vkinne@netins.net.
8:33 AM
Post a Comment

Popular posts from this blog

Carrie Anne - The Beginning of the Story

So, I’ve been trying to sort out how to start this story. It’s been difficult to articulate. Difficult to pick which details to share, and which to hold close. But it’s a story too good, too beautiful, not to share – so here goes! When Matt and I first became parents, we thought our family was complete. We envisioned raising Ethan surrounded by loving friends and family – just the two of us. Given all that we had gone through to finally become parents, we felt content with just the one child. The most adorable boy in the whole wide world. Our Ethan was the apple of our eyes – the most amazing gift. We marveled at all of his accomplishments, soaked up all his love and personality, and celebrated the joy of parenthood at every exhausting, wonderful turn. Along the way, we’ve built a strong and loving relationship with Ethan’s birthmother. We visit yearly, and stay in close contact with pictures, emails, and texts. I have attempted to describe my feelings for her many times over the
1 comment
Read more

I may as well tell you...

I had a miscarriage. I’ve debated for weeks whether or not to acknowledge it publicly. It’s such a personal thing…and this is such a public medium. But a few months have gone by and I’m no closer to feeling ok about it and truly nothing else on my mind really compares, so here I am, letting the world in on my secret. Over the past few weeks I’ve found very little comfort in the fact that only a small handful of people know about the miscarriage. It became nearly unbearable this week, during all our wonderful family Christmas celebrations. Being surrounded by so many people who love me and support me and have no idea how my heart has been broken – it’s a lonely place to be. Not that I would want them all to bombard me with pity or questions or sad looks in their eyes – I realize I can’t have it both ways. But a little acknowledgement goes a long way and I simply can’t ignore or deny the fact that something major happened in my life and impacted me, impacts me still.   It was a warm
4 comments
Read more

WE'RE ADOPTING!!

Bah! I said it…er wrote it…out loud. There it is, in black and white for the world to see. (Pause for a drink and a breath) Matt and I are in the very early stages of planning to adopt. We have had a few meetings with an adoption agency, we are gathering the necessary information, and we are making plans to get this ball officially rolling SOON. It has been a very long and winding road to get us to this point, and honestly I never thought we’d get here. Adoption isn’t what we started out hoping for. It isn’t where we thought we’d end up. But here we are – gearing up for what will surely be a life-changing experience for us with hearts full of hope and excitement. The topic of adoption has come up in the past, but we quickly dismissed it for one reason or another. Matt and I have had our fair share of insecurities about whether or not adoption would be a good option for us. Who would look at our family profile and pick us?? It was a burning question that we probably still have
5 comments
Read more