Skip to main content

Wednesday Update: 9/28/05

Holy cow, can it really be September 28th!?!?!

Matt’s wonderful Aunt Linda sent me a note recently and told me that I should keep a little diary of the blessings that happen during this time. It’s true that you can tend to focus in on the negative things and overlook the wonderful little positive things when dealing with a stressful situation like this. So, I have decided to start each of my updates with something positive.

Earlier today I truly felt like the only positive thing I could say was that I like my new sweater. It has just been one of those days. However, I can now say that there were a few positive things that have happened today:
· After the attempt to insert the feeding tube in his stomach failed (further details to follow) the GI doctor was able to reinsert the feeding tube back in his nose and it was placed correctly the first time so we didn’t have to do 4 more x-rays and have him lay on his side all day.
· The physical therapists said he did even better today with his exercises, even though he was very groggy most of the day.

The day started out pretty rough. Mom got here early and the nurses told her that they had to give him a sedative around 6:30 this morning because he was being too agitated. Of course, we do NOT want him to have these sedatives as it really knocks him out and he loses valuable therapy time. So we were a little upset about that.
Next we head down to do the PEG insertion Percutaneous Endoscopic Gastric Tube (G-Tube)…inserting the tube directly into the stomach. We head down, wait for him to be prepped, wait for an hour as they ‘do’ the procedure, then head back to recovery…where we find Matt sleeping soundly with the tube back in his NOSE!!!!!!!!!!!!!!!!!!!!!! Of course, we were instantly furious. Turns out that due to his ‘anatomy’ the GI doctor couldn’t see well enough to tell where he was and didn’t feel comfortable poking around much more than he did. I am glad that he realized his limitations and didn’t put Matt at any more risk, but was very upset that he had to have that stupid tube put back in his nose. He is now on the schedule to have the G-Tube inserted tomorrow, and the Radiologist will do it. Apparently, they will go from the outside in this time and shouldn’t have any issues. Please pray that the procedure is a success and we can finally move forward. He has been very groggy all day and will be again tomorrow after his procedure, so we’ve lost 2 days and that is frustrating. At least these procedures buy us more time to get him referred to a skilled care facility. I’m anxious for that next step, to get him doing more therapy and really on the road to normal. I know we have to be patient…and that is the hardest part for me. We all need prayers for that. I know this is going to be a long and painful process and am just SO ready to be moving on from here.


Popular posts from this blog

I Was Born in a Small Town

So we’ve decided to move. We love Ankeny, our house, and our neighborhood so it’s a little bittersweet to think about moving, but ever since Ethan came along - oh how things have changed. When we set out to build a wheelchair friendly house for Matt nearly 9 years ago, we were mainly focused on the functionality inside the house. While of course we wanted the ease and function of zero grade entry, we also yearned for the freedom he would know in a house with wider doorways and room to maneuver the bulky chair. In our old house there were literally rooms he never went into, simply because he couldn’t get through. Our Ankeny home was a dream come true in so many ways. And it was lovingly planned out and put together by so many incredibly generous and thoughtful people. We were humbled time and time again with how things came together for us in that house. I’ll never forget coming home for the first time with Matt after our long, exhausting trip back from China. It was late, we were jet …

Where We're at…Right Now

This whole adoption thing is tough stuff, friends. It is a roller coaster ride like no other. And I have to be honest – I’m still not sure this will be it for us. I want to believe it is…but I’m just.not.sure. Matt and I were on our way to church yesterday, listening to the 90’s station when the cult classic ‘Achy Breaky Heart’ came on. We both giggled…and may have turned it up a tad. Near the end we both howled out a woooo-woooo in near perfect, spontaneous, unison with dear mullet headed Billy Ray. It made me laugh instantly and I blurted out ‘we’re so perfect together’. And honestly – we are.
That thought stuck with me all morning.  We.are.perfect.together.  What we have – our marriage, our friendship, our devotion and commitment to each other….they are priceless. Our union is a blessing. It is blessed. 100% meant to be. No doubt in my mind. There is no one on this planet who could ever know me like Matt. We have been through hell and back together. In the hospital, shortly after his …

Mother's Day Emotions

Mother’s Day weekend is coming and I’m finding myself all sorts of emotional – go figure. I think the anticipation of how I might feel on my very first Mother’s Day after so many years of hoping, waiting, and wondering sort of made it a bit anticlimactic. Or maybe I guarded my heart a little and didn’t fully let the magnitude of my emotions wash over me. Regardless, I find myself MUCH more emotional this time around.
Last night we watched a TV show about children growing up and moving out etc…and I actually cried. All those jerks who told me how fast children grow and how quickly the time moves…were right. Of course I feel how swiftly time moves the older I get…I blinked and now I’m in my (gulp) 40’s. But I simply could not have fathomed how I would feel about the amount of time I have to be Ethan’s mother. It feels finite. Fleeting. Just not enough.
Don’t get me wrong, I love watching Ethan grow! He is learning and changing and cracking me up all the time. He loves climbing, and runn…